What's happening for you all today?

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Sophia
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Re: What's happening for you all today?

Post by Sophia » Thu Dec 19, 2024 2:52 pm

Thank goodness it’s been milder warm weather since.
Tonight we go to a xmas dinner class reunion (high school class of ‘66)
We doing alright … some are coming down from Brisbane.
There’s talk of having next reunion in Brisbane.
So many of our class mates are up there!
I’m not drinking alcohol tonight as it seems to make me feel like I’m having a hot flush!
It’s definitely the BP meds.
I’m going to save drinking alcohol (maybe lemon line n bitters, or shandy beer) for Xmas day.
I can’t tolerate or process straight wine, any wine, maybe if I put lemonade or orange juice with it.
I’m certain to sort out that weird drinking problem :beer

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tllwd
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Re: What's happening for you all today?

Post by tllwd » Thu Dec 19, 2024 4:42 pm

Sophia wrote:
Thu Dec 19, 2024 2:52 pm
I’m certain to sort out that weird drinking problem :beer
RA medications do it highly likely.

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tllwd
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Re: What's happening for you all today?

Post by tllwd » Thu Dec 19, 2024 4:58 pm

I sliced 3 cabbage heads, carrots and apples for sauerkraut in 5 liters crock and leftover cabbage will become stir fry with prawns and squid tonight.

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Jasin
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Re: What's happening for you all today?

Post by Jasin » Thu Dec 19, 2024 8:17 pm

Helped out Rotary with the lamb spit during a nearby town's Christmas Street Party Festival. The lamb was finished in an hour and fifteen minutes after the first carve. Kept some soft fat for my magpie friends. They have a youngun to feed.

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Sophia
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Re: What's happening for you all today?

Post by Sophia » Fri Dec 20, 2024 10:18 am

Last night was a good catch up with class mates, and we had a group photo I put on fb in a school friends forum… well I laughed when one of my female friends said “a lot of young ones married to old men” Pmsl :giggle
The meal was beautiful, beef so tender!
I had a chocolate mouse for dessert!
I didn’t drink alcohol so I was a good girl!

Today I’m going to the gym (twice weekly now… I don’t want to, I like being lazy so I force myself to go!)
Then I have to do food shopping as the fridge is looking bare.
Then home as daughter coming over for me to look after her Beaglier while she goes to doctor.
I’m sitting here, just had a cuppa coffee, a toast with butter and Vegemite, and meds.
And I feel like being a sloth! But I must go!
See yas :-)

mellie
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Re: What's happening for you all today?

Post by mellie » Sat Dec 21, 2024 6:53 pm

My specialist asked if I was a drinker before starting me on RA meds, and when I responded in the negative, he said good.
So I don't drink at all, but occasionally I'd really like to have just one glass of wine, I really miss it with a risotto especially.
Alcohol can cause flushing, some people like my mum get a red chest and nose, ( highly vascularised areas) depending how translucent your skin is, how fair you are determines how obvious it is to others. tllwd is right re- meds and hot flashes
I do get hot flashes with my methotrexate, only on the first night that I inject, and I'm on Blood pressure meds too. I get so overheated in bed on chemo nights that I usually get up and change my jammies, unless I have slept through. It's annoying, I now place a spare pair of pjs in my bedside draws because my daughter still sleeps in my bed, and I don't want to wake her up going through my tallboy draws in the dark.

Baby powder helps though, just be sure that it's talc free.
I also find using underarm antiperspirant *rexona* powder fresh sprayed all over upper body straight after shower helps too, especially around the back, neck, boob ( sorry guys- *blush*) and groin area which is exactly where you need it. It's unhealthy to do this everyday, so I only do it on chemo nights to help keep me dry
Keep water bottle next to bed, very important to keep hydrated with methotrexate to take care of kidneys.
( apologies in advance if this is TMI for some, but honestly, the hot flashes with certain RA and even other meds can be really annoying, especially in the middle of the night and it's freezing cold . Last thing you want is to change out of saturated clothes into dry clothes in the middle of a Ballarat winter at 2am in the morning. Not fun! ) The deodorant helps alot, but you should wash it off in the morning, even after showering the night before to wash off deodorants aluminium +chemicals and toxins you've sweated out from chemo during sleep . Very important as Methotrexate is cytotoxic, even in small doses.
All RA meds are fairly toxic so very important to wash the chemicals we excrete off our skin at least once a day.
I can't imagine these chemicals would be great for our skin, mixed with our own perspiration, body salts which ends up concentrated on our body's largest organ. Our skin.
So when you are on RA drugs, no shower skipping guys- sorry 😄
It's genuinely hazardous.

Yum Jasin, I'd love a spit roast, and haven't enjoyed one for years, since I lived in Sydney.
I think the community would have been very happy with you for doing this. You have magpie friends too. So do we, and we feed them oats. Not every day though.
My sook of a cat is an indoors only pet, but he's utterly terrified of magpies, all birds in fact, but especially Maggie's, so he watches us feeding them through the door and makes this strange sound , it's hilarious, but very wierd. He's a strange cat. 😄
Sophia, nothing better than catching up with old friends, I'm looking forward to this when we go to Sydney in the new year.
Mum and stepdad will babysit. 😀 "Yay"
Last time we went to Sydney my beautiful mum put on this amazing lunch for my friends and I, but I think we'll be meeting up at a club , because we have a few more coming this time, hopefully something with a live band and a nice risotto.

I may even break the chemo rules and have a couple of drinks when I arrive, then sit on lemon lime bitters. Won't be a late afternoon.


Ps, I am really pleased with Humira the RA drug, ( biologics) and whilst it's made a big difference, pain wise, I still get lethargic with RA.
It's getting better though, or I'm learning to cope with it, unsure, because I think dealing with it becomes our new normal, so ..... unsure really if lethargy is improving or not.
~A climate change denier is what an idiot calls a realist~https://g.co/kgs/6F5wtU

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Jasin
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Re: What's happening for you all today?

Post by Jasin » Sat Dec 21, 2024 7:21 pm

Your cold sweats sound awful Mellie.
I know when I have to travel and motel, hotel, etc. The sheets are sometimes made of a fabric that doesn't breath and I awake drenched in the middle of the night, even though it's not hot or it is cold. If it's cold. I've got to sleep sheet, blanket free and use the aircon to keep me warm. Though I still sweat a bit on the bottom side. I don't know why they use such sheets?

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Bobby
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Re: What's happening for you all today?

Post by Bobby » Sat Dec 21, 2024 7:23 pm

Jasin wrote:
Sat Dec 21, 2024 7:21 pm
Your cold sweats sound awful Mellie.
I know when I have to travel and motel, hotel, etc. The sheets are sometimes made of a fabric that doesn't breath and I awake drenched in the middle of the night, even though it's not hot or it is cold. If it's cold. I've got to sleep sheet, blanket free and use the aircon to keep me warm. Though I still sweat a bit on the bottom side. I don't know why they use such sheets?
Polyester sheets are cheap.

Always use cotton sheets.

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Sophia
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Re: What's happening for you all today?

Post by Sophia » Sat Dec 21, 2024 11:10 pm

Bobby wrote:
Sat Dec 21, 2024 7:23 pm
Jasin wrote:
Sat Dec 21, 2024 7:21 pm
Your cold sweats sound awful Mellie.
I know when I have to travel and motel, hotel, etc. The sheets are sometimes made of a fabric that doesn't breath and I awake drenched in the middle of the night, even though it's not hot or it is cold. If it's cold. I've got to sleep sheet, blanket free and use the aircon to keep me warm. Though I still sweat a bit on the bottom side. I don't know why they use such sheets?
Polyester sheets are cheap.

Always use cotton sheets.
And best to buy organic cotton … so much from China with that … what I used to think was a new smell… but it’s formaldehyde … no wonder the instructions were “wash before use”
Other good sheets to buy are a mix of cotton with bamboo.
And then there’s linen sheets too.
Sometimes in Spotlight they have a huge sale and can get it at such a good markdown.
Also top doona or blanket … I have doona with 100% cotton cover and wool filling.
We just need to be so mindful when buying stuff and not just go blindly buying anything that was cheap in the past!

Even clothes I have I look at and read label… I am now avoiding polyester etc
I’m going to say in a more intimate fashion… although I’ve finished menopause I found the best panty liners were more pricey but organic cotton “Tom organic cotton” pads and liners. I even buy sorbent hypo allergenic toilet rolls. Don’t want irritation of perfumes.

If anyone takes their sweet time shopping reading labels … it’s me! :giggle
I’m annoyed I thought Teflon coated pans were great.
They are but… once it starts to show scratchy little tears… I throw it out.
Bessemer pots are so expensive and coated… I had one good one I was so careful with it… had visitors for dinner and wanted to help with washing up… used a scratchy scrubber and ruined the bottom of my pot!
I swore to myself there and then no one is allowed to wash my pots etc
I just say “no leave the dishes… I can do them tomorrow, let’s just chill out for now. I put water in pots to soak them and then treat them like precious!
I have an over head crate with hooks over sink and I hang pans on that so it’s not cluttered on top of each other in cupboard.

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tllwd
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Re: What's happening for you all today?

Post by tllwd » Sun Dec 22, 2024 7:26 am

We are going up to Barrington Tops today to watch solstice sunset.

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