What's happening for you all today?

[tllwd]

We were visited by first Christmas beetle last night.

mellie, have you tried leflunomide to control RA flares?

[Black Orchid]

It's been a very LONG time since I've seen a Christmas Beetle.

[Sophia]

We were visited by first Christmas beetle last night.

mellie, have you tried leflunomide to control RA flares?

Hmmm, I must ask my RA specialist about that one with my next appointment coming up soon.
I’m on plaquenil.
Was also put on this other script can’t recall the name and I’m away from home a few days so I can’t go look at it… I stopped taking that 2nd one because I started putting on weight! I thought… whoa no thanks! I must admit I felt energetic and no pains but will just stick to the plaquenil as it quietens my immune response (lupus)

[tllwd]

We were visited by first Christmas beetle last night.

mellie, have you tried leflunomide to control RA flares?

Hmmm, I must ask my RA specialist about that one with my next appointment coming up soon.
I’m on plaquenil.
Was also put on this other script can’t recall the name and I’m away from home a few days so I can’t go look at it… I stopped taking that 2nd one because I started putting on weight! I thought… whoa no thanks! I must admit I felt energetic and no pains but will just stick to the plaquenil as it quietens my immune response (lupus)

Leflunomide is generic or "chemical" name, the actual medicine I take is called "Arava". I am on it more then a year now, it works and no side effects.

[Sophia]

I’ve been looking up with interest…

https://www.drugs.com/compare/hydroxych ... eflunomide

[Sophia]

Today… a lot of silly running around doing odd errands.
But today I go to the gym… I get lazy and every Friday feel like not bothering.. but it does do me good…I just started doing Tuesdays so that’s twice a week I get that lazy feeling I don’t want to go
It’s boring but at my age it’s important for staying agile etc
I think it helps… my favourite is the treadmill….
I pick 2.6 klm per hour speed and sometimes do rolling hills, or just incline…started at 5 mins x 2 per session now I’m up to 12 mins x 2.
Just when I’m feeling clever, along comes these younger fitter people doing a running speed for half hour on treadmill.
I may not be as good as many, but I’m better than some of my age. Doing balance is important too.
Try this… while standing… lift one foot and balance on other foot up to a minute.
I was able with right foot but not left foot!
Today I try again.
See yas.

[mellie]

Wow. Now that's a bunk bed!

Lol, I was right, she was back in my bed by 10pm, ahe said once her big sister fell asleep on bottom bunk she got scared. No peace for me , ever!! She won't even sleep over at school camps, so I book hotel rooms near as possible to school camp grounds and stay there myself, so I can drop her off at 7ish in mornings and pick her up around 8'sh at night. Just so she's getting some experience of camp.
She's getting better though, is actually exploring the possibility of staying overnight at next year's grade 5/6 camp.YIPEEEEE🥳

Honestly, if it happens, I'll literally dance.

[mellie]

Today is another crazy Friday for us.

Today began with cat vomiting on my Turkish wool rug and a blocked toilet, which requires that I stay home and wait for plumber. He's a great guy, shouldn't be too far away.

Then shopping, school pick-up, dance classes ( for kiddo not me lol) then somehow get some work done in between.
Tuesdays and Wednesdays are wipeout days for me (chemo for RA) so I generally feel too unwell so Thursdays and Fridays are my catchup on work days.

Just the usual boring mum stuff, although I am still writing and getting work done on my present manuscript. Little by little.

A pic of Mr O, who has a propensity to guts his food down like a dog in the morning, and the rug he chose to decorate for me thismorning.

He looks rather innocent, but don't be fooled, he's extremely intelligent and knows exactly what to do inorder to get exactly what he wants, always.

We love him none the less, but he really is a naughty boy.

Hmmmm


https://ibb.co/3RTY0PV

[mellie]

We were visited by first Christmas beetle last night.

mellie, have you tried leflunomide to control RA flares?

No, they normally just give me cortisone injections or go on cortisone tablets when I flare.
Thanks, I'll look into Leflunomide, as the cortisone has very undesirable side effects as you probably know. Eating being just one of them



https://medlineplus.gov/druginfo/meds/a600032.html
They generally won't prescribe Leflunomide until it's last resorts kinda thing.
From what I've researched, it's so toxic that you are strictly advised not to conceive a child ( both men and women) even 2 years after stopping treatment. This is how long it remains in the body for.

All the DRMA drugs are powerful, but for it to still remain in the body for 2 years after having stopped it is pretty scary.

I thought my chemo ( methotrexate injection) was hard core..... and it's side effects are the same anyway by the looks of it.

Sometimes I wonder if the anti rheumatic drugs are just designed to kill us off quicker lol.

Well, I'm a Sydney cockroach and will survive anything they throw at me.

I have to survive, I am too freaking busy to expire, got too much to do. Ha

[Jasin]

Onya Mellie! That's the spirit. As long as you don't let 'busy' be an excuse for stressing out.
I knew your youngest would ditch the bunk bed in the night. The youngest are always the Mother's Child, as they say.
I'm sure you'll have fun camping too. Might be crazy fun though.
2 years in one's system is indeed a long time, especially when it compromises other things... like you making another baby. Lol